Josh had his first nose bleed yesterday.  It is always scary when you see your child's face covered with blood, it's even worse when a child has Hemophilia.  Of course my first reaction is AHHHHHHHH!!!!  I AM FREAKING OUT! And those High School Drama classes really pay off when you freak out inside and have to show a calm and knowledgeable face  to your baby. 

My husband ran to call the doctor to check what to do.

Meanwhile, with my years of "mommy-doctor" training, I thought that bath can sooth his nose bleed.  Josh was thrilled with the idea of going to the bath, after all it's his favorite activity.  Who wouldn't love getting everything and their mommy completely soaking wet?

The bleeding seemed to subside.

My husband came to the room to share what the doctor told him.  If the bleeding will stop in 3 minutes or less, then it's common "vein-pop" bleed and we don't have to run to the hospital.

Saline helps as well to sooth the nose bleed.

Here is an article I found:

How to stop a nosebleed in someone with hemophilia A:

• Pinch the nose firmly for 15 minutes without letting go. Make sure you are pinching the bulb of the nose so that it is completely closed.
• Spray decongestant nasal spray in each nostril prior to the nose pinch. Do not use a decongestant if you have heart disease or high blood pressure.
• Sit upright, do not lie down.
• Breathe through your mouth.
• Drink cold water to clear blood from your throat.
• Seek medical care if the bleeding does not stop within 15 to 20 minutes.

Additional home care includes:

• Stop smoking.
• Avoid hot liquids.
• Do not take aspirin for at least one week.
• Do not pick blood from your nose once the bleeding has stopped.
• Do not blow your nose for 2 days

Hemophilia A affects about 15,000 in the U.S.

Made from donated plasma


THURSDAY, Feb. 17 (HealthDay News) -- Corifact has been approved by the U.S. Food and Drug Administration to treat congenital Factor XIII deficiency, a rare genetic disorder that could cause life-threatening bleeding.

Corifact was approved as an orphan drug that's intended to treat a rare condition or disease. The FDA said it sanctioned the drug based on a study involving 14 people, including children, who had congenital Factor XIII deficiency. Reported side effects included allergic reactions, chills, fever, headache, and an increase in liver enzymes.

The drug is made from the pooled blood plasma of healthy donors. The FDA said people who use Corifact may wind up creating antibodies that make the drug ineffective, and warned doctors against administering doses higher than those listed on the product's label.

Corifact is made by the German pharmaceutical firm CSL Behring.

Featured In: CSL Behring