Josh is the youngest member of our family and was diagnosed with Hemophilia A severe when he was nine months old. 

My uncle had Hemophilia and died at the age of 12 in 1940's from a bleed in his mouth that doctors could not stop, so I knew there was a possibility that I may have a child born with Hemophilia.  Still, the news that my baby, my little angel, my third child has Hemophilia and it's severe was devastating.  So many questions...


                    I am learning how to live with Hemophilia every day. 
My family is learning about it every every day. Today, we would like to share what we've learned to help others like us to learn how to allow our little man with Hemophilia live a full and rich life.
Welcome to Hemophilia Prince web site! 
The goal of this site is to share resources among all of us to make the lives as reach and pain/bruise free as possible for our precious Prince and Princesses with blood disorders.

This website is updated often, so come back soon and see what's new


Preventive exercises

It is recommended that people affected with hemophilia do specific exercises to strengthen the joints, particularly the elbows, knees, and ankles.Exercises include elements which increase flexibility, tone, and strength of muscles, increasing their ability to protect joints from damaging bleeds. These exercises are recommended after an internal bleed occurs and on a daily basis to strengthen the muscles and joints to prevent new bleeding problems. Many recommended exercises include standard sports warm-up and training exercises such as stretching of the calves, ankle circles, elbow flexing, and quadriceps sets. More


Alternative medicine

While not a replacement for traditional treatments, preliminary scientific studies indicate that hypnosis and self-hypnosis can be effective at reducing bleeds and the severity of bleeds and thus the frequency of factor treatment. Herbs which strengthen blood vessels and act as astringents may benefit patients with hemophilia, however there are no peer reviewed scientific studies to support these claims. Suggested herbs include: Bilberry (Vaccinium myrtillus), Grape seed extract (Vitis vinifera), Scotch broom (Cytisus scoparius), Stinging nettle (Urtica dioica), Witch hazel (Hamamelis virginiana), and yarrow (Achillea millefolium). More

Anticoagulants such as Heparin and Warfarin are contraindicated for people with hemophilia as these can aggravate clotting difficulties. Also contraindicated are those drugs which have "blood thinning" side effects. For instance, medications which contain aspirin, ibuprofen, or naproxen sodium should not be taken because they are well known to have the side effect of prolonged bleeding.

Also contraindicated are activities with a high likelihood of trauma, such as motorcycling and skateboarding. Popular sports with very high rates of physical contact and injuries such as American football, hockey, boxing, wrestling, and rugby should be avoided by people with hemophilia. Other active sports like soccer, baseball, and basketball also have a high rate of injuries, but have overall less contact and should be undertaken cautiously and only in consultation with a doctor. More